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If you would have asked me three years ago if I thought I would be traveling to advocate newborn screening, I would have laughed. “Nahhhh”, I would have said, “I’m not important enough to do that.” Yet here I am. Traveling, speaking, writing, and telling the world about pulse ox screening, heart defects, and the importance of newborn screening.
I owe it all to Corbin. My beautiful son that died from heart defects he was born with. My strong son who is helping to change the world and save other babies.
On my most recent trip to Albany, NY, I met with an organization called NYMAC: The New York Mid-Atlantic Consortium on Genetic and Newborn Screening Services. They had gathered newborn screening professionals and advocates from around the East Coast to meet and discuss ways to help spread NYMAC’s influence. I was very excited to present my knowledge and experience with the power of social media. I know first hand how influential and world changing sites like Facebook and Twitter can be. They helped me pass Corbin’s Bill after all!
After a long, but productive discussion, I feel like we have all decided on our individual projects to help the organization and will be very successful advocates with our new partner in NYMAC. I, of course, will be focusing on the social media aspect of networking and awareness. Be on the look out for more information on NYMAC and how you can help spread the word and reach those who will benefit from their services!
Ruth Caruthers, Advisor to the board at SBTS, Founder of The Corbin Story
Blog posts are written by both Save Babies Through Screening Foundation representatives and others not officially affiliated with the foundation. Posts do not necessarily reflect the views of SBTS. Posts are not medical advice. Please talk to your physician.
